|Son1 snaps the rest of the Tirraoros|
|Son2 with Lara from EDS-UK|
- 1 in 17 people will be affected by a rare disease at some point in their life.
- This amounts to approximately 3.5 million people in the UK.
- 75% of rare diseases affect children and 30% of rare disease patients will die before their 5th birthday. There are over 6,000 recognised rare diseases.
If you're looking for support for a rare disease, check out RareConnect, a multi-lingual forum that has more than 30 rare disease communities - maybe your condition is one of them. If not, why not start one?