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10 Nov 2015

Invisible Disabilities Week: Our experience with treatment for Ehlers Danlos syndrome

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This week it's the Care Quality Commission's #InvisibleDisabilities Week and today, they're highlighting Ehlers Danlos syndrome ...
9 Sept 2015

Not ready for wrinkles: My facial rejuvenation with Juvéderm CosmeticFillers

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The years zip by so quickly, especially when you have children. You're naturally more focused on them especially, as in my case, when th...
20 Aug 2015

Why good enough may ultimately, never be good enough.

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My children are now both sixth-formers and thinking about (hopefully) where life might take them. As they are autistic, that path is unlikel...
27 May 2015

EDS Awareness: My experience with Ehlers Danlos syndrome and Pregnancy

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It’s EDS Awareness Month in May and I’ve decided to write about something that may be on the minds of many young women with Ehlers Danlos- ...
9 May 2015

#SilentSunday: The art of smiling while screaming

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That moment when you perfect the art of smiling so everyone thinks you're okay... But inside, your head is still filled with the sound...
5 May 2015

Thoughts for politicians - and for us all- on doing the right thing

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Cowardice asks the question  - is it safe? Expediency asks the question  - is it politic? Vanity asks the question  - ...
20 Mar 2015

A fictional essay: On being sucked in and churned up by a narcissist

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I was reading Quora the other day in the section about psychology and relationships - it had come up in my email feed and I had, as ever, ...
27 Jan 2015

How to really look good in clothes

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It's the age old question that has made millionaires out of Gok Wan and Trinny and Susannah. Obviously the answer is to wear clothes...
2 Nov 2014

#SilentSunday: Places I'd love to visit-Novelda

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Monastery of Santa Maria Magdalena
25 Apr 2014

"We undiagnosed kids need the chance to be children because not all of us get the chance to be adults"

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Read more about Dominic and Renata's journey over on Special Needs Jungle Dominic: We undiagnosed kids need the chance to be child...
19 Mar 2014

Flashmob St Pancreas: sign the petition, save some lives #pancreaticcancer

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Watch the St Pancras Pancreas Cancer Action Flash Mob, then see these two beautiful women that it took from me and our families. Now ...
9 Mar 2014

#SilentSunday - Fighting Ehlers Danlos Memory Loss.

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23 Feb 2014

#SilentSunday: Rare Disease Day 2014

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20 Feb 2014

The British author proving you can make a good living from eBooks

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Whoever said you can’t make money from writing e-books, hasn’t met M A Comley. MA, or Mel Comley , was in the first wave of ...
2 Feb 2014

#SilentSunday: Mother's little helpers?

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24 Jan 2014

Sucked into the black hole of a rare disease

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It's fair to say that my life has changed completely in the last year and a half. Not just my day to day life, but also my hopes and m...