This blog is for the slightly random stuff about life that doesn't fit on my fairly awesome, award-winning site, Special Needs Jungle
17 Mar 2013
Raising awareness of Ehlers Danlos Syndrome - an under diagnosed rare condition
Lara Bloom, who runs the Ehlers Danlos Society charity, is making a documentary about EDS to help raise awareness of what is a rare but also an under-diagnosed condition.
Labels:
#ehlersdanlos,
EDS,
ehlers danlos syndrome,
rare disease,
RareConnect