As ever, My EDS Awareness month post sneaks in on the last day of May. It's been a big month, including a short, but amazing, trip to...

It's fair to say that my life has changed completely in the last year and a half. Not just my day to day life, but also my hopes and m...

I'm writing this post as part of Ehlers Danlos Syndrome Awareness Month, with which both Youngest and myself have recently been diagnose...

I wrote a while ago about my nephew, Dylan and his fight against Nephrotic Syndrome, a rare disease that affects his kidneys. Next week, ...