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Showing posts with label POTS. Show all posts
Showing posts with label POTS. Show all posts
20 Aug 2019

Getting stronger with EMSCULPT, the no-pain, muscle-building, fat-loss medical device*

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*In collaboration with S-Thetics, Beaconsfield. My husband is super-fit, works out most days with weights and the odd run. But although...
28 Aug 2016

Study indicates deconditioning doesn't cause PoTS, but has a cardiac trigger

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A very small, yet enlightening medical commentary about Postural Orthostatic Tachycardia syndrome (PoTS) has recently popped up. PoTS is...
21 Mar 2016

Disabling effects of PoTS shown in largest ever survey and how educating health professionals can help

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Postural orthostatic Tachycardia syndrome or PoTS, is a complete bastard of a condition. It doesn't kill, thankfully, but it can quite ...
22 Dec 2015

Can you help #careforLaura crowdfund fund life-saving surgery for Laura's Ehlers Danlos syndrome?

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As you may know, since 2013 have been disabled by the rare disease (or rarely diagnosed disease), Ehlers Danlos syndrome. I've been at r...
9 Mar 2014

#SilentSunday - Fighting Ehlers Danlos Memory Loss.

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24 Jan 2014

Sucked into the black hole of a rare disease

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It's fair to say that my life has changed completely in the last year and a half. Not just my day to day life, but also my hopes and m...
21 Dec 2013

Christmas, loss, love & friendship and hopes for a better 2014.

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Ah, Christmastime, eat, drink and be merry. I said BE MERRY , damn you! Peace, goodwill and all that. 2013 has not been the most auspiciou...
21 May 2013

The vicious three headed dog of EDS, POTS & Chronic Pain

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I'm writing this post as part of Ehlers Danlos Syndrome Awareness Month, with which both Youngest and myself have recently been diagnose...