17 Mar 2013

Raising awareness of Ehlers Danlos Syndrome - an under diagnosed rare condition

Lara Bloom, who runs the Ehlers Danlos UK Support charity, is making a documentary about EDS to help raise awareness of what is a rare but also an under-diagnosed condition.
Ehlers Danlos is a connective tissue disorder that Son2 has. He regularly has dizzy spells, joint pains and extreme fatigue.

Here's a trailer for the documentary.

You can visit the charity's website here